Dementia is not a natural part of ageing

Bingo? Knitting? Wartime songs? Nope!

This certainly wasn’t what I experienced when I visited the Alzheimer’s Society Working Age Dementia Café.

Dementia is not a natural part of ageing is 1 of 5 key messages promoted by the national Dementia Friends campaign. It is indeed true that dementia can affect younger people. I had the pleasure of meeting Patrick, John and Steve who are all living with dementia.  

The group meets at The Oakfield Centre, Brettell Lane in Brierley Hill. It takes place on the last Wednesday of every month from 7pm till 9pm. Anyone who has been diagnosed with any form of dementia under the age of 65 is more than welcome. The group would love to see some new friendly faces!

When I popped along to meet the group I received such a warm welcome. Led Zeppelin was playing in the background and the group told me they were known as “The Rockers.” This was so refreshing. Patrick and John were having a go at a rock music themed word search and Steve was amazing us all with his musical knowledge. Later in the evening the group got creative and made different models out of clay which they all seemed to enjoy. Even the less creative amongst us found it quite therapeutic!

What struck me the most was the bond between the group members, not just the gents but also their wives and daughters. Maureen, Louise and Sandra all told me that they enjoyed attending the group and found the element of peer support invaluable. When I asked the guys what they liked most about the group John said that he loves the company, Steve agreed and Patrick said he liked the biscuits! I love his honesty, a man after my own heart…

I’d definitely recommend this group to any younger people living with dementia and their carers. I really enjoyed myself and I’m sure that others would too. Patrick, John and Steve all met one another on Alzheimer’s Society’s Living Well With Dementia Course and have since become great friends. You can find out more about the course and the café by contacting the local branch on 0121 521 3020 or by visiting the website.

Before I came to work for Integrated Plus, I worked for Alzheimer’s Society as a Senior Dementia Friends Officer. I had the pleasure of training up volunteer Dementia Friends Champions who delivered Dementia Friends Information Sessions. These Sessions help the public gain a basic understanding of dementia and learn some of the small things that they can do to help people with dementia living in their community. Awareness raising is so important as with the right support and understanding people with dementia can have the opportunity to live well.

Within Integrated Plus, my colleagues and I have supported 140 people living with dementia to access the support that they need and to help them remain active in their communities. The Working Age Dementia Café was a great example of a group of friends who are living well and enjoying one another’s company. To find out more about how you can become a Dementia Friend please visit the website.

Being part of our story and sharing the love

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A couple of weeks ago, I thought I’d start an experiment. I’d been working on collating all the data, stats, facts, figures and stories for our annual report – yes, it’s that time of year again! We always like to include some of the feedback we’ve received over the year, because we recognise that it brings our work to life.

This year’s annual report will be a story of the exciting stuff we’ve been involved in over the past year; it’ll show how we’ve helped people make connections, how we’ve tried to inspire others and how we’ve championed great things going on across Dudley borough. But it’s not only our staff who’ve been characters in this story; our story simply wouldn’t be as rich without others – the people, groups, communities, partners and places that are crucial ingredients for nurturing caring, vibrant and strong communities in Dudley borough.

So, I took a chance and posted an invitation on Twitter, asking people to let us know how we’ve 1) helped them to connect; 2) inspired them; 3) championed great work. This is essentially crowdsourcing an element of our annual report to get some authentic voices to demonstrate what we’ve done together.

I’ve been staggered by the responses we’ve received so far. Here are a few of them:

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The people who responded were:

Thank you so much to all of you for so readily responding!

If you’d like to share how you’ve been part of our story you still can! Simply comment below or use the #dcvsstory hashtag on Twitter or Facebook and join in!