Meet Paul and Alison. They’re the team behind the lovely Alzheimer’s and Friendship Group that meets at the Storehouse in Brierley Hill on most Monday evenings. It’s a place where people with Alzheimer’s and other types of dementia and their carers can come to meet others, share mutual support and make friends.
I visited them recently to learn more about them and what the group means to the people that attend.
As soon as I got to the door, I was greeted by Paul, who welcomed me into the Storehouse coffee shop which was laid out nicely so that everyone could see and talk to each other, or talk in smaller groups if they wanted to. I introduced myself to everyone and soon people started telling me their own stories about caring for someone with Alzheimer’s, which I think was a sign of how comfortable they felt in their surroundings.
Paul and Alison clearly have time for everyone who walks through the door, helping them to feel welcome, wanted and comfortable. This is something that they’ve been doing for the past nine years; I was bowled over to learn that the group had been going for that long, just over the road from my office!
Back in 2009, Paul, who has a background of working with people with dementia, met someone who couldn’t go out because of their caring role. In response to this, he and Alison, who worked with older people, thought about providing respite, a space for people with dementia while their carers got some time to themselves. They spoke to Albion Street Church, who agreed to let Paul and Alison use some space, first in the church itself and then in the Storehouse when it was refurbished. The Church also holds a small budget for the group which they can dip into for things like refreshments and entertainment, though they rarely use it and make sure it goes a long way!
Over the years, the group has been flexible to the wishes of its participants. While some carers have brought their loved ones and taken advantage of the respite offered, other carers have stayed with their loved ones and participated in the activities. At the moment, the regular participants are all former carers, who continue to attend for the companionship they have gained over the years; none of the participants knew each other before they started attending the group. Some come from as far as Sedgley because of their shared experiences of caring for someone with Alzheimer’s. As we all shared our emotional experiences of loving and losing someone with Alzheimer’s, it did feel good to take some solace from people who had experienced it too. I can completely see how the Alzheimer’s and Friendship Groups helps people to feel less isolated.
On the evening of my visit, we were treated to some entertainment from Rachel a talented musician, who played a range of pieces on saxophone. As a music obsessive myself, this was a peaceful treat and I think everyone enjoyed it! In fact, Alzheimer’s Society says that
evidence suggests that the brain processes music differently to other functions, allowing people with dementia to enjoy songs and music long after other abilities are challenged.
Rachel is connected to the Church herself and she gave her time and skills freely to entertain us for a couple of hours on a Monday night. This group really is a great example of how great things can happen with the right ingredients: people with a passion; a friendly venue and a supportive organisation behind them; good connections which can be mobilised for very little outlay. This is why I hadn’t heard of the group before: they have everything they need to succeed!
Of course, this group is open to new members, whether they’re carers, cared-for, or both. So if you’re interested in making new friends in a supportive environment, the Alzheimer’s a Friendship Group meets on Monday evenings February-December (except bank holidays), 6pm onwards.
It’s wonderful that the Alzheimer’s and Friendship Group exists. According to figures from Alzheimer’s Society:
- 225,000 people will develop dementia this year – one every three minutes
- There are 670,000 carers of people with dementia in the UK
- In 2015, an estimated 850,000 people were living with dementia
So there’s room for groups like this and others to create supportive environments for carers and their loved ones. In fact, in Coseley residents have been coming together to develop a Dementia Friendly Cinema to help people with dementia to stay connected in their community. Using a wonderful guide from Alzheimer’s Society to make small adaptations to help people with dementia feel safe and supported, they’ve had one screening and are planning another soon. The next screening will be Some Like It Hot on Tuesday 16 October, at 2pm. To register for this, please visit the Coseley Community Cinema page.
If you’d like to get more involved with either the Alzheimer’s and Friendship Group or the Coseley Dementia Cinema, then please feel free to get in touch and I’ll link you with them.