Building friendships for people with dementia and their carers in Brierley Hill

Meet Paul and Alison. They’re the team behind the lovely Alzheimer’s and Friendship Group that meets at the Storehouse in Brierley Hill on most Monday evenings. It’s a place where people with Alzheimer’s and other types of dementia and their carers can come to meet others, share mutual support and make friends.

I visited them recently to learn more about them and what the group means to the people that attend.

As soon as I got to the door, I was greeted by Paul, who welcomed me into the Storehouse coffee shop which was laid out nicely so that everyone could see and talk to each other, or talk in smaller groups if they wanted to. I introduced myself to everyone and soon people started telling me their own stories about caring for someone with Alzheimer’s, which I think was a sign of how comfortable they felt in their surroundings.

Paul and Alison clearly have time for everyone who walks through the door, helping them to feel welcome, wanted and comfortable. This is something that they’ve been doing for the past nine years; I was bowled over to learn that the group had been going for that long, just over the road from my office!

Back in 2009, Paul, who has a background of working with people with dementia, met someone who couldn’t go out because of their caring role. In response to this, he and Alison, who worked with older people, thought about providing respite, a space for people with dementia while their carers got some time to themselves. They spoke to Albion Street Church, who agreed to let Paul and Alison use some space, first in the church itself and then in the Storehouse when it was refurbished. The Church also holds a small budget for the group which they can dip into for things like refreshments and entertainment, though they rarely use it and make sure it goes a long way!

Over the years, the group has been flexible to the wishes of its participants. While some carers have brought their loved ones and taken advantage of the respite offered, other carers have stayed with their loved ones and participated in the activities. At the moment, the regular participants are all former carers, who continue to attend for the companionship they have gained over the years; none of the participants knew each other before they started attending the group. Some come from as far as Sedgley because of their shared experiences of caring for someone with Alzheimer’s. As we all shared our emotional experiences of loving and losing someone with Alzheimer’s, it did feel good to take some solace from people who had experienced it too. I can completely see how the Alzheimer’s and Friendship Groups helps people to feel less isolated.

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On the evening of my visit, we were treated to some entertainment from Rachel a talented  musician, who played a range of pieces on saxophone. As a music obsessive myself, this was a peaceful treat and I think everyone enjoyed it! In fact, Alzheimer’s Society says that

evidence suggests that the brain processes music differently to other functions, allowing people with dementia to enjoy songs and music long after other abilities are challenged.

Rachel is connected to the Church herself and she gave her time and skills freely to entertain us for a couple of hours on a Monday night. This group really is a great example of how great things can happen with the right ingredients: people with a passion; a friendly venue and a supportive organisation behind them; good connections which can be mobilised for very little outlay. This is why I hadn’t heard of the group before: they have everything they need to succeed!

Of course, this group is open to new members, whether they’re carers, cared-for, or both. So if you’re interested in making new friends in a supportive environment, the Alzheimer’s a Friendship Group meets on Monday evenings February-December (except bank holidays), 6pm onwards.

It’s wonderful that the Alzheimer’s and Friendship Group exists. According to figures from Alzheimer’s Society:

  • 225,000 people will develop dementia this year – one every three minutes
  • There are 670,000 carers of people with dementia in the UK
  • In 2015, an estimated 850,000 people were living with dementia

So there’s room for groups like this and others to create supportive environments for carers and their loved ones. In fact, in Coseley residents have been coming together to develop a Dementia Friendly Cinema to help people with dementia to stay connected in their community. Using a wonderful guide from Alzheimer’s Society to make small adaptations to help people with dementia feel safe and supported, they’ve had one screening and are planning another soon. The next screening will be Some Like It Hot on Tuesday 16 October, at 2pm. To register for this, please visit the Coseley Community Cinema page.

If you’d like to get more involved with either the Alzheimer’s and Friendship Group or the Coseley Dementia Cinema, then please feel free to get in touch and I’ll link you with them.

Great news from the brand new Priory Community Centre!

What a difference a year makes! Priory Community Centre now looks a far cry from the empty, not-quite-finished shell of a building I visited in June 2017. Now it’s vibrant, full of people of all ages doing all sorts of creative things together!

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It’s a journey that started long before I started working with the passionate group of people who make up Priory Community Association, a charity that’s been without a home since the North Priory estate in Dudley was flattened and redeveloped in 2010. Priory Community Association volunteers live and breathe their community; they continued to work in the community at other venues to make sure they stayed connected, they maintained links with other community centres for support while they were without a home and they provided a strong voice for what the new community centre should look and feel like.

Last year, I was asked to support Priory Community Association through the asset-transfer process, work that had been started by my former colleague Caroline, who’d worked closely with Dudley Council staff on its asset-transfer strategy. In basic terms, asset transfer is when building or land moves from statutory control into the control of not-for-profit organisations. In Dudley borough, this has in most cases been a transfer of management (through a lease) rather than transferring ownership from the local authority to another organisation. Asset transfer can be a lengthy process (with more work required the longer the lease is), so it’s good to approach it with realistic expectations. Generally, the process involves completing a short expression of interest and then working on a business plan that will show the community support for the transfer, what kinds of activities will happen there and how they will benefit the community and the financial viability. Understandably, the local authority will want to make sure that the transfer will benefit the community and that it is sustainable.

So this is the process we started with Priory Community Association. We got busy with the business plan and I think together we made a really strong case for the community benefits, linking not only with the Dudley Council plan but showing links to priorities of the Health and Wellbeing Board, West Midlands Police and Dudley Clinical Commissioning Group. We had some help and good feedback from Martin, who’s the principle link with the local authority for groups looking at asset transfer – he does an excellent job!

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What we all found more difficult was the financial figures. We were lucky enough to be able to get some figures from other community centres, but we weren’t sure how realistic they would be, given that Priory’s was a completely new building (and hopefully more energy efficient!). On top of that, while we were working on the plan, the completed building risked standing empty and Priory Community Association couldn’t give any certainty to potential users and hirers of the centre. So I asked Martin whether a temporary lease might be an option; this would allow Priory Community Association to get in the building and start managing it, giving them experience, building interest and providing a more realistic view of what the costs would be thus making their business plan more robust. At the same time, the building wouldn’t have to stand empty for too long and be at risk of deterioration.

Dudley Council was open to this, which was wonderful news! We thought ahead and it seemed that the timings might coincide with the summer holidays, so I suggested that Awards for All might be interested in funding a playscheme with a difference – one that would help to launch the brand new community centre and kickstart other activities that would happen there. Together we worked on the application – it was a good one! – and Priory Community Association landed a grant of around £5,000 from Awards for All. The group also successfully applied to Dudley Council’s Community Forums to help them furnish the kitchen and other areas of the centre, and their good relationships with other community centres in the borough meant they had lots of chairs and tables donated.

I recently went back to the centre on the last day of the playscheme to see how things had gone. I was utterly staggered by what this passionate group of people has achieved! They’ve made connections with children and families who’ve come to the playscheme and joined in the range of the activities on offer, connections that will last many years judging by the ‘Thank you’ cards on display and the wonderful comments Priory Community Centre has received on its Facebook page, which has been joyously charting each day of the playscheme. Honestly, if you want to brighten your day, take a look at the wonderful pictures and comments like the ones below:

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During my visit a group of children and adults descended on trustees and volunteers with flowers and chocolates to say thank you for the two weeks of fun they’d had. Of course, I had to get a snap!

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Leaders, people like Celia, Sally and Rachel, have also instilled the sense that the community centre is for absolutely anyone and everyone. The behaviours the leaders have shown and the language they’ve used have helped people feel a sense of ownership. Children have made posters encouraging everyone to tidy up after themselves and people feel like they can contribute to making activities happen. The fact that they had enough volunteers to cover a day trip of 59 people to Weston and keep activities going at the centre shows that people are willing to help and volunteers are valued there. This is great news for the future of the centre!

The people I spoke to had lovely things to say about the local PCSO’s too. They went to each day of the play scheme, getting involved in the activities, judging competitions, doing the less attractive jobs! It seems like the play scheme has been a great way to connect communities with each other and with the people that serve those communities, like the Police, who want to be visible and engaged there.

The future looks good. Throughout the last few months, Priory Community Association have been engaging with people and organisations that might want to use the centre. There’s an exciting plan in the pipeline with young people’s charity Top Church Training, which might see the Community Centre cafe opening regularly, and there’s been a lot of learning about what works from the play scheme – a regular families session might be on the cards!

Whatever the plans, I wish Priory Community Centre every success. The people involved make my job an utter privilege and we’ll always be happy to support them as they develop.

Share how you’re connecting older people in your community

team-spirit-2447163_1920Dudley CVS is involved in a small piece of work with Age UK Dudley to help older people make connections in their communities that can combat loneliness, boost health and help people to be more resilient.

We’d like to shout about the great work that is already happening at a small scale, local level in community groups across Dudley borough, celebrate what they’re doing and learn about how we can support more of this type of activity.

If your group is helping older people to stay connected, or you’d like to get started, tell us:

  • What types of activities you do together, if you’re already doing things as a group
  • What more you would like to do – and what’s making it difficult to do more of what you’d like to do
  • What would help you to do continue or extend your activities

For inspiration, you might like to read about what Netherton Regeneration Group is doing to build kindness and social connectedness in their community.

If you get in touch, Helena and I will pay you a visit to help you to shout about the great things you’re up to and to offer you further support. So please, feel free to contact us using the comments section below, emailing smallgroups@dudleycvs.org.uk or calling Becky on 01384 573381.

 

The positive impact of physical activity on people with sight loss

Thomas Pocklington swimmers

Meet some of the staff, volunteers and swimmers from Thomas Pocklington Trust Stourbridge’s project supporting people with sight loss to access sport and physical activity, a piece of work which is not only helping people to feel healthier, it’s also giving participants a new lease of life.

As one of the projects funded by the Improving Physical Activity Fund (mentioned in my previous post), I met with some of the group members, 3 volunteers, Sharon the instructor and project-manager David, to discuss what impact the project has had on them.
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Creating places for people to thrive: Diyya’s journey

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In the last two years, Diyya has grown into a successful and lively organisation that improves the quality of life for women and their families in Lye and the surrounding areas. I recently joined them at their bustling Saturday Club to meet some of the people they support. Continue reading