Building friendships for people with dementia and their carers in Brierley Hill

Meet Paul and Alison. They’re the team behind the lovely Alzheimer’s and Friendship Group that meets at the Storehouse in Brierley Hill on most Monday evenings. It’s a place where people with Alzheimer’s and other types of dementia and their carers can come to meet others, share mutual support and make friends.

I visited them recently to learn more about them and what the group means to the people that attend.

As soon as I got to the door, I was greeted by Paul, who welcomed me into the Storehouse coffee shop which was laid out nicely so that everyone could see and talk to each other, or talk in smaller groups if they wanted to. I introduced myself to everyone and soon people started telling me their own stories about caring for someone with Alzheimer’s, which I think was a sign of how comfortable they felt in their surroundings.

Paul and Alison clearly have time for everyone who walks through the door, helping them to feel welcome, wanted and comfortable. This is something that they’ve been doing for the past nine years; I was bowled over to learn that the group had been going for that long, just over the road from my office!

Back in 2009, Paul, who has a background of working with people with dementia, met someone who couldn’t go out because of their caring role. In response to this, he and Alison, who worked with older people, thought about providing respite, a space for people with dementia while their carers got some time to themselves. They spoke to Albion Street Church, who agreed to let Paul and Alison use some space, first in the church itself and then in the Storehouse when it was refurbished. The Church also holds a small budget for the group which they can dip into for things like refreshments and entertainment, though they rarely use it and make sure it goes a long way!

Over the years, the group has been flexible to the wishes of its participants. While some carers have brought their loved ones and taken advantage of the respite offered, other carers have stayed with their loved ones and participated in the activities. At the moment, the regular participants are all former carers, who continue to attend for the companionship they have gained over the years; none of the participants knew each other before they started attending the group. Some come from as far as Sedgley because of their shared experiences of caring for someone with Alzheimer’s. As we all shared our emotional experiences of loving and losing someone with Alzheimer’s, it did feel good to take some solace from people who had experienced it too. I can completely see how the Alzheimer’s and Friendship Groups helps people to feel less isolated.

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On the evening of my visit, we were treated to some entertainment from Rachel a talented  musician, who played a range of pieces on saxophone. As a music obsessive myself, this was a peaceful treat and I think everyone enjoyed it! In fact, Alzheimer’s Society says that

evidence suggests that the brain processes music differently to other functions, allowing people with dementia to enjoy songs and music long after other abilities are challenged.

Rachel is connected to the Church herself and she gave her time and skills freely to entertain us for a couple of hours on a Monday night. This group really is a great example of how great things can happen with the right ingredients: people with a passion; a friendly venue and a supportive organisation behind them; good connections which can be mobilised for very little outlay. This is why I hadn’t heard of the group before: they have everything they need to succeed!

Of course, this group is open to new members, whether they’re carers, cared-for, or both. So if you’re interested in making new friends in a supportive environment, the Alzheimer’s a Friendship Group meets on Monday evenings February-December (except bank holidays), 6pm onwards.

It’s wonderful that the Alzheimer’s and Friendship Group exists. According to figures from Alzheimer’s Society:

  • 225,000 people will develop dementia this year – one every three minutes
  • There are 670,000 carers of people with dementia in the UK
  • In 2015, an estimated 850,000 people were living with dementia

So there’s room for groups like this and others to create supportive environments for carers and their loved ones. In fact, in Coseley residents have been coming together to develop a Dementia Friendly Cinema to help people with dementia to stay connected in their community. Using a wonderful guide from Alzheimer’s Society to make small adaptations to help people with dementia feel safe and supported, they’ve had one screening and are planning another soon. The next screening will be Some Like It Hot on Tuesday 16 October, at 2pm. To register for this, please visit the Coseley Community Cinema page.

If you’d like to get more involved with either the Alzheimer’s and Friendship Group or the Coseley Dementia Cinema, then please feel free to get in touch and I’ll link you with them.

Great news from the brand new Priory Community Centre!

What a difference a year makes! Priory Community Centre now looks a far cry from the empty, not-quite-finished shell of a building I visited in June 2017. Now it’s vibrant, full of people of all ages doing all sorts of creative things together!

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It’s a journey that started long before I started working with the passionate group of people who make up Priory Community Association, a charity that’s been without a home since the North Priory estate in Dudley was flattened and redeveloped in 2010. Priory Community Association volunteers live and breathe their community; they continued to work in the community at other venues to make sure they stayed connected, they maintained links with other community centres for support while they were without a home and they provided a strong voice for what the new community centre should look and feel like.

Last year, I was asked to support Priory Community Association through the asset-transfer process, work that had been started by my former colleague Caroline, who’d worked closely with Dudley Council staff on its asset-transfer strategy. In basic terms, asset transfer is when building or land moves from statutory control into the control of not-for-profit organisations. In Dudley borough, this has in most cases been a transfer of management (through a lease) rather than transferring ownership from the local authority to another organisation. Asset transfer can be a lengthy process (with more work required the longer the lease is), so it’s good to approach it with realistic expectations. Generally, the process involves completing a short expression of interest and then working on a business plan that will show the community support for the transfer, what kinds of activities will happen there and how they will benefit the community and the financial viability. Understandably, the local authority will want to make sure that the transfer will benefit the community and that it is sustainable.

So this is the process we started with Priory Community Association. We got busy with the business plan and I think together we made a really strong case for the community benefits, linking not only with the Dudley Council plan but showing links to priorities of the Health and Wellbeing Board, West Midlands Police and Dudley Clinical Commissioning Group. We had some help and good feedback from Martin, who’s the principle link with the local authority for groups looking at asset transfer – he does an excellent job!

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What we all found more difficult was the financial figures. We were lucky enough to be able to get some figures from other community centres, but we weren’t sure how realistic they would be, given that Priory’s was a completely new building (and hopefully more energy efficient!). On top of that, while we were working on the plan, the completed building risked standing empty and Priory Community Association couldn’t give any certainty to potential users and hirers of the centre. So I asked Martin whether a temporary lease might be an option; this would allow Priory Community Association to get in the building and start managing it, giving them experience, building interest and providing a more realistic view of what the costs would be thus making their business plan more robust. At the same time, the building wouldn’t have to stand empty for too long and be at risk of deterioration.

Dudley Council was open to this, which was wonderful news! We thought ahead and it seemed that the timings might coincide with the summer holidays, so I suggested that Awards for All might be interested in funding a playscheme with a difference – one that would help to launch the brand new community centre and kickstart other activities that would happen there. Together we worked on the application – it was a good one! – and Priory Community Association landed a grant of around £5,000 from Awards for All. The group also successfully applied to Dudley Council’s Community Forums to help them furnish the kitchen and other areas of the centre, and their good relationships with other community centres in the borough meant they had lots of chairs and tables donated.

I recently went back to the centre on the last day of the playscheme to see how things had gone. I was utterly staggered by what this passionate group of people has achieved! They’ve made connections with children and families who’ve come to the playscheme and joined in the range of the activities on offer, connections that will last many years judging by the ‘Thank you’ cards on display and the wonderful comments Priory Community Centre has received on its Facebook page, which has been joyously charting each day of the playscheme. Honestly, if you want to brighten your day, take a look at the wonderful pictures and comments like the ones below:

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During my visit a group of children and adults descended on trustees and volunteers with flowers and chocolates to say thank you for the two weeks of fun they’d had. Of course, I had to get a snap!

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Leaders, people like Celia, Sally and Rachel, have also instilled the sense that the community centre is for absolutely anyone and everyone. The behaviours the leaders have shown and the language they’ve used have helped people feel a sense of ownership. Children have made posters encouraging everyone to tidy up after themselves and people feel like they can contribute to making activities happen. The fact that they had enough volunteers to cover a day trip of 59 people to Weston and keep activities going at the centre shows that people are willing to help and volunteers are valued there. This is great news for the future of the centre!

The people I spoke to had lovely things to say about the local PCSO’s too. They went to each day of the play scheme, getting involved in the activities, judging competitions, doing the less attractive jobs! It seems like the play scheme has been a great way to connect communities with each other and with the people that serve those communities, like the Police, who want to be visible and engaged there.

The future looks good. Throughout the last few months, Priory Community Association have been engaging with people and organisations that might want to use the centre. There’s an exciting plan in the pipeline with young people’s charity Top Church Training, which might see the Community Centre cafe opening regularly, and there’s been a lot of learning about what works from the play scheme – a regular families session might be on the cards!

Whatever the plans, I wish Priory Community Centre every success. The people involved make my job an utter privilege and we’ll always be happy to support them as they develop.

Meet the volunteers transforming Lye and Wollescote Cemetery

Shadowed by the beautifully refurbished Lye and Wollescote Chapels (now known as the Thomas Robinson Building) Lye and Wollescote Cemetery is a peaceful spot for reflection and an historically fascinating site. I visited recently and was overwhelmed by the transformation the Friends of Lye and Wollescote Cemetery have made to the site in the past two and a bit years since I saw them last!

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IMG_20180808_113733885_HDR-01Lye and Wollescote Chapels is a rare example of two chapels – Church of England and Nonconformist – being housed in one building, and originally the cemetery was divided along those lines. The cemetery now has an area for Muslim burials, it houses the graves of 29 servicemen who lost their lives in the First and Second World Wars (managed by the Commonwealth War Graves Commission) and it’s the final resting place of local people of historical significance, from inventors to entrepreneurs.

The Friends of Lye and Wollescote Cemetery are working hard to make sure people can still see these links to the past and to create a pleasant environment for visitors. The group came together during the renovation of the Grade II listed chapels led by West Midlands Historic Buildings Trust (WMHBT). As part of the £1.2m project, WMHBT wanted to engage with the community to increase the chances of the project’s long-term sustainability. Soon, a small group of volunteers was clearing the cemetery ground on the first Saturday of every month.

FoLWCDonna and I met the volunteers in 2016. We visited the cemetery, which was overgrown and pretty uninviting (I’m sure it didn’t help that it was a cold and dismal January morning!) and did a series of workshops in the nearby (and warm) Stambermill House where we built a vision for what the cemetery could be like in the future, painted a picture of the skills, talents and networks that each volunteer brought and created a simple plan. We also developed a simple constitution during our conversations about whether the volunteers would like to become a constituted group or to remain informal for the time being.

Fast forward two years and the group has achieved so much! The Friends of Lye and Wollescote Cemetery signed their constitution and opened a bank account, which unlocked a grant of £5,000 from the Community Forums. They’ve also managed to raise a further £2,500!

The visible difference the group has made to cemetery is clear. They’ve cleared grounds and uncovered graves that they didn’t know were there; they’ve cleaned graves meticulously; they’ve brought in professionals to repair graves; they’ve installed two beautiful benches commemorating those who died in the First and Second World Wars; they’ve set up a system to make it easier for people to carry water from the site’s only tap.

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All of this work has increased the number of visitors to the cemetery, whether for the local history, for remembrance or for the peaceful environment that’s open to everyone. The Friends have told me that more people now come to lay flowers at graves, many of which have no family members left to tend to them.

IMG_20180808_112838443_HDR-01The group’s Facebook group is very active too, and there are always lots of messages of thanks to the Friends from local people who walk through the grounds, as well as progress reports from the Friends themselves. It really feels like these volunteers have built a sense of community around this almost forgotten site.

Coincidentally, when I paid a visit to the grounds I met Ian from Dudley Council’s Bereavement Services, which manages the cemetery. Ian was as enthusiastic about the group’s achievements as I am and he’d love it if every cemetery in the borough had a friends group, testament to how local people really do make local places.

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So what about the future? Members of the Friends of Lye and Wollescote Cemetery plan to continue their work. They want to repair more graves, which costs money; each grave that needs professional repair costs in the region of £400-£1,500. I’m in the process of identifying funders that may support this type of work and the group will do plenty of its own fundraising. Wish us luck!

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If you’d like to get involved with Friends of Lye and Wollescote Cemetery, you’ll find them on site on the first Saturday of every month from 9.30am. They meet on the third Wednesday of the month, 6.30pm at Stambermill House and you can always join the Facebook group.

Thirty years supporting people who have suffered a stroke and their families

Anne Adams, Dudley CVS Trustee, has been supporting people who have suffered a stroke and their families for more than thirty years and is now up for an award for her lifelong dedication to helping others.

After forming Dudley Stroke Association in 1987, Anne still devotes many hours of her time to the organisation, supporting people who have been affected by strokes throughout their journey to better health.

Through the organisation, Anne also coordinates evening events, coffee mornings, day trips and lunch clubs for people who have been through a stroke. Anne said:

“Our motto ever since we started in 1987 is ‘there is life after stroke’ because people who have been through it feel so isolated and alone before they realise support is out there.”

In 1977, Anne worked as a speech therapist with people affected by stroke. In those early days, Anne was convinced more could be done to help both the person suffering a stroke and their loved ones. In 1982, Anne formed the Dudley Stroke Club to provide opportunities to share experiences and organise social events. But specific information about how to help people post-stroke was very limited.

In 1987, a stroke victim, Jeanne Hignett, encouraged Anne to create Dudley Stroke Association.

Between 1987 and 2007 Anne wore two hats, by day a professional speech therapist and at other times a volunteer champion of the work of Dudley Stroke Association and people affected by stroke.

Anne retired from paid work in 2007, but continued to give her time volunteering with the Dudley Stroke Association.

About her 25 years as a Dudley CVS Board Member, Anne said, “Dudley Stroke Association is indebted to Dudley CVS for the help and support we have received over many years, particularly when we were applying for Charity status. Dudley Stroke association would not be where it is today without Dudley CVS. I feel privileged to be a Board Member.”

Today, Anne has been nominated for volunteer of the year at the Great Big Thank You Awards.

Anne said: “If I won the Volunteer of the Year Award, it would really be for everyone who has helped make the group what it is today. It would be for all the people who have worked so hard to overcome their obstacles. For all those people who have tried so hard to get their lives back on track after going through such a difficult time.”

Each day, until November 18th special vote tokens will be published in the Express & Star to collect. For more information on how to vote for Anne visit: http://www.starthankyou.expressandstar.co.uk/

A year of DY1-stop shop!

It’s been a year since Eileen and I launched ‘DY1-stop shop‘, our monthly drop-in for anyone with questions about community groups, charities, social enterprises, getting involved in community activities or volunteering.

Here’s a little infographic that gives you a little bit more detail about the kinds of conversations we’ve been having over the first year!

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I’ve really enjoyed working in this way. It’s a non-threatening way for people to make their first contact with us and it’s quite fun not knowing what to expect from one month to the next! I think Eileen and I have both benefited from each other’s differing knowledge and skills, on top of those of our colleagues we’ve been able to call on by virtue of simply being in the same place – thanks to Donna, Nicki, and Melissa from Healthwatch Dudley for being there for us! It’s meant that people have left us buzzing with new ideas, contacts and lines of inquiry.

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Most recently, Eileen and I met Cllr Steve Waltho and his wife, Jayne, who are part of a new group being set up to keep alive the legacy of Dudley mountain climber and peace campaigner Bert Bissell. I gave Steve some help with a constitution to help formalise the Bert Bissell Memorial Society and Eileen had lots of ideas for connections the new group could make.

At April’s DY1-stop shop we’ll be joined by our Funding Officer, Martin and Inderjit Nijjer who’s the External Funding and Community Grants Manager on the ESF Programme at Walsall Council. Inderjit will be available to answer any questions you may have about the ESF grants programme.

DY1-stop shop is open on the first Wednesday of every month, 10am-1pm in the coffee shop of DY1, Stafford Street, Dudley. Maybe I’ll see you there soon!

Celebrating our work with people, communities and organisations

Dudley CVS Annual Report, 2014-15

I’m really pleased to share the work I and my wonderful colleagues have done to support individuals, communities and organisations last year. The Dudley CVS Annual Report outlines how we’ve been connecting and inspiring people and organisations to achieve positive change and championing their work. It covers the year April 2014-March 2015.

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Six simple steps to involving volunteers for small charities @SCWeek2015

Eileen (@dudleyvols) has shared a nice, visual six simple steps to involving volunteers in advance of Small Charity Week when we’ll be holding a drop in to answer all of your volunteer-involving questions on Thursday 18th June, 1pm-5pm.

Why not drop into our office between those times or, if you can’t make it, ask your questions here, on the Volunteer Centre blog, Twitter or Facebook and we’ll do our best to answer them for you.

As Eileen said, she can help you every step of the way and all year round to help your volunteers have the best possible experience with you.

Celebrating Small Charity Week in Dudley borough

SCW Loz Logo Date 2015

Small Charity Week (15th-20th June) celebrates and raises awareness of the essential work of small charities (defined as charities and CICs that have an annual turnover under £1.5million).

This year, we’re joining in with the celebrations and running special activities and workshops across the week including:

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